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Cancer registration is an internationally recognized approach for continuously and systematically collecting, storing, sorting out, analyzing and assessing cancer incidence, mortality, and survival data in accordance with a specifically designed scheme. Cancer registration and follow-up system serves to undertake long-term and systematic cancer registration in order to capture the epidemiological distribution, trend, and disease burden of malignant tumors as measured by incidence, mortality, and survival statistics, and provides valuable information for planning and developing healthcare development plan and for evaluating cancer prevention strategies and control measures.
The cancer registration and follow-up system of Guangdong Province was founded at the request of the then Ministry of Health and NCCR, and have became an integral part of national cancer registration system. As early as in 1970s, Zhongshan City and Sihui-county-level City were among the first batch to embark on nasopharyngeal cancer registration and follow-up in view of higher epidemic of nasopharyngeal cancer in 1970 and 1976,respectively. As of mid 1980’s, given the needs of cancer control and prevention, the two cities further expanded cancer registration to cancers of all sites by taking full advantage of local three-level network for cancer control and prevention, signalling the beginning of population-based cancer registration in Guangdong Province. In 1998, with the support from local health administrative departments, Guangzhou City and Shenzhen City embarked on the population-based cancer registration. In 2008, the Ministry of Finance and then Ministry of Health packaged cancer registration into the public health programme funded by the central government, and Guangzhou City,Shenzhen City, Zhongshan City and Sihui-county-level City were included in the national cancer registry network. In subsequent years, between 2009-2012, Zhuhai City, Jiangmen City, Yangshan County in Qingyuan City, Nanxiong-county-level City and Wengyuan County in Shaoguan City were successively included into the national cancer registry network. In 2014-2015, Guangdong cancer registration network further expanded with inclusion of eight more registration areas, including Dongguan City, Nanhai District and Shunde District in Foshan City, among others. Historically for the first time,registries were set up in Eastern and Western Guangdong Province.
To strengthen the regulation of cancer registration and follow-up in Guangdong Province,the then Guangdong Provincial Health Department issued an official document entitled “Cancer Registration and Follow-up Scheme (Trial) in Guangdong Province” (Guangdong Health, 2010,No.70) in 2010, which stipulated obligations to be undertaken by each party, standardized registration procedures and routines about cancer registration and designated Guangdong CDC as the provincial technical instruction center. In 2015, the then Health and Family Planning Commission of Guangdong Province amended previous edition of “Cancer Registration and Follow-up Scheme(Trial) in Guangdong Province” by adding new sections including expanded registration catchment,unify data sources to be adopted and documents management and registration data usage.
Guangdong Province have carried out cancer prevention and control for nearly 40 years and developed a set of efective management regulations and operation mode. As integral part of the cancer registration and follow-up system of Guangdong Province, each cancer registry within Guangdong Province, has its respective particular operation mode. In terms of technical instruct organization which is in charge of cancer registration, except in Zhongshan City and Sihui-county-level City,where institution of cancer is full responsible for cancer registration, other registries were affiliated with local center for disease control and prevention.Each registry has specialized division and full-time staff, has set up a three-level reporting network,and conducts routine cancer case registration and notification, registration capacity training, field supervision, quality control, data analysis and usage,etc. Data collection method has now been shifting from manually filling in notification card through filling in E-card online to database extraction,linkage and exchange.
At present, with the number of cancer registries on the rise and the quality of data improving, cancer registry data has been used for developing cancer prevention and control strategies and for providing raw data for scientific and clinical research. In 2017, registration data for 2014 from Guangzhou City, Shenzhen City, Zhongshan City, Dongguan City, Foshan City (Shunde District) , Zhaoqing City (Duanzhou District and Sihui-county-level City), Urban Jiangmen, Zhuhai City and Shaoguan City (Nanxiong-county-level City) passed quality assessment by NCCR successfully and were included for compiling and publishing China Cancer Registry Annual Report 2017 .